Photo of Daniel, living with CPT II, a type of LC-FAOD

find support
in one location.

Patient support available for you

Ultragenyx is committed to patients with rare diseases, which is why we created UltraCare Patient Services for DOJOLVI—your guide throughout your treatment journey.

Our UltraCare Guides have varied backgrounds, including social workers, healthcare professionals, and patient advocates, and are ready to help you gain and maintain access to DOJOLVI.

UltraCare Guides can help you to:

Understand your
insurance coverage

Utilize patient support program resources, including help with billing and coding

Find and navigate available financial assistance and patient assistance programs that can help to cover co-pay and other out-of-pocket expenses

Start and stay on DOJOLVI treatment through personalized counseling and education based on the recommendations, advice, and prescription of your healthcare team

Take the first step

Step 1: Ask your healthcare
provider to fax your completed*
Start Form to 1-415-723-7474.

Step 2: Sign up by visiting UltraCare Patient Services or call 1-888-756-8657 to connect with our UltraCare Guides.

Visit UltraCare

*Please note that a completed form is required for patient enrollment.

Download DOJOLVI materials

Back-to-School
Checklist

A checklist to help you know what to discuss with your or your loved one’s healthcare team before each school year starts

Download | Share

DOJOLVI
Brochure

Learn about LC-FAOD, DOJOLVI, and patient support available to you

Download | Share

DOJOLVI
Dosing Guide

Information to discuss with your healthcare team on how to store, administer, and keep track of DOJOLVI doses

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Daily
Dosing Tracker

A tool you can use to keep track of your DOJOLVI doses and notes for your healthcare team

Download | Share

UltraCare Patient
Resource Guide

An overview of the UltraCare Patient Services program and the resources available to you

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Materials Compatibility
Reference

A reference overview of materials that are compatible or incompatible to use with DOJOLVI

Download | Share

LC-FAOD Disease Monitoring
Program for Patients

Learn more about a long-term LC-FAOD observational study

Download | Share

Descargar materiales de Dojolvi

Folleto
de DOJOLVI

Obtenga información sobre LC-FAOD, DOJOLVI y la asistencia al paciente disponible

Descargar | Compartir

Guía de dosificación
de DOJOLVI

Información sobre cómo almacenar, administrar y hacer un seguimiento de las dosis de DOJOLVI que puede conversar con su equipo de atención médica

Descargar | Compartir

Guidance for Preparing DOJOLVI

These video segments demonstrate how to use the dosing components to prepare a DOJOLVI dose.

Watch Videos

Ver videos en Español.

Guidance for mixing DOJOLVI into foods

This video series will give a demonstration on how to thoroughly mix DOJOLVI with soft foods or drinks when taking orally. DOJOLVI should not be administered alone to avoid gastrointestinal upset.

Watch Videos

Learn more and find your community

Metabolic disease information and advocacy

A scientific organization specifically dedicated to research and education about fatty acid oxidation disorders

An advocacy organization working to educate and support patients with mitochondrial disease and their families

Rare disease information and advocacy

A center within the National Institutes of Health (NIH) that maintains a list of rare diseases and related terms to help people find reliable information about their disease

An advocacy organization that provides support, education, and resources to the rare disease community

A patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them

A dedicated Ultragenyx team committed to providing rare disease education, resources, patient stories, and events

IMPORTANT SAFETY INFORMATION

Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby. Pregnancy Safety Study: There is a pregnancy safety study for women who take DOJOLVI during pregnancy. The purpose of this study is to collect information about your health and your baby's health. You can talk to your healthcare provider or contact 1-888-756-8657 to enroll in this study or get more information.

are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk. Talk to your healthcare provider about the best way to feed your baby if you take DOJOLVI.

are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

What are the possible side effects of DOJOLVI?

Feeding tube problems. Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC). Check the feeding tube to make sure it is working properly and not breaking down.

Intestinal absorption problems in patients with pancreatic insufficiency. If you have pancreatic insufficiency, consult with your healthcare provider as it may affect how well DOJOLVI works.

The most common side effects of DOJOLVI include:

stomach (abdominal) pain
diarrhea
vomiting
nausea

These are not all the possible side effects of DOJOLVI. Call your healthcare provider for medical advice about side effects. You may report side effects to Ultragenyx Pharmaceutical Inc. at 1-888-756-8657 or FDA at 1-800-FDA-1088.

Please see full Prescribing Information, including Patient Information, for additional important safety information and instructions for use.

IMPORTANT SAFETY INFORMATION

Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk. Talk to your healthcare provider about the best way to feed your baby if you take DOJOLVI.

are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

What are the possible side effects of DOJOLVI?

Intestinal absorption problems in patients with pancreatic insufficiency. If you have pancreatic insufficiency, consult with your healthcare provider as it may affect how well DOJOLVI works.

The most common side effects of DOJOLVI include:

stomach (abdominal) pain
diarrhea
vomiting
nausea

Please see full Prescribing Information, including Patient Information, for additional important safety information and instructions for use.

find support
in one location.

Patient support available for you

Take the first step